
Jeff (son) drove over Monday night to be with us for a couple of days. On Tuesday morning, Donnie got up to eat breakfast, and he was communicative for about 30 minutes, and he ate a good breakfast. We’ll take it!!
Yesterday we had to increase his Dilaudid to 3 mg/hour (up from 2 mg/hour). He is very pain controlled. Unfortunately, he is quite psychotic, due to his pain meds. All night long, and all day long, he is having fantastical dreams. He is throwing baseballs, counting to three with his fingers (maybe its for striking out), throwing fishing line on a rod and reel, hugging Kaia (grandchild), yelling out loud, talking with Brianna (grandchild), talking about all kinds of crazy stories that make us laugh, and being happy and funny. Darlene is with us today. Donnie was lying in the bed with his eyes closed telling me, “Don’t worry, Darlene took care of it. She kicked their a#*@! We were dying laughing, and Darlene was strutting around like Super Woman.
Donnie ate dinner at the table with us tonight (Wednesday). It was Donnie, Momma, Darlene and myself. He hugged his Momma so sweet in the kitchen while she was preparing our dinner. We served our plates, and headed to the table. Donnie said the prayer. He thanked God for family that cares for him, and for God that is taking care of his needs. It was a special moment for all of us.
The good news is that he has very little pain, he is not nauseated, he is eating 3 small meals a day, and he is quite happy. His dreams must be like he is tripping on LSD. He is never angry or mad. Even Rachael and Jeff were here Monday night, and he had them cracking up. He’s being his funny self, without pain and nausea. I am thankful for that for sure!!
Although he is still eating and still walking around in the house with assistance, he is not able to carry on a conversation with us. He goes into his dream world, and starts talking about lots of stories in his head. He will make sense for about 3 or 4 sentences, then “off to the races” with the thoughts his mind is conjuring up. We are all very grateful that his world is full of happiness. At this time, you couldn’t ask for more. We are so grateful for such grace from God!!!
Even at the dinner table tonight, he took a bite of food, dozed off to sleep, and then woke up laughing. He told us he dreamed Bubba (1st cousin) was in a 1942 Sportster, in a tux, smokin’ a stogie. He was looking SHARP!!!! Hahaha!!! Still dreaming about his family that he grew up with and loves so much.
He is getting lots of Haldol for his psychosis, and that seems to be helping him. I have had very little sleep over the past 3-4 days, as Donnie has been very, very busy day and night. Hospice is sending a nurse tonight to stay with him for 8 hours, so I can get some much needed rest. They are going to do that for 3 nights. I feel like I’ve been working the night shift for several days in a row, even though family is here supporting us. So grateful for Hospice, and for our kids and our family that check on us, stay with us, and care for us. I would be in a puddle in the corner without them.
As always, we cherish your prayers.
Love, Donnie & Tina
39 replies on “Precious time with family”
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So deeply grateful that Donnie is not suffering, and you still have wonderful moments with him to cherish. It inspires me and gives me hope. I am glad the family is able to rally around and enjoy these days. Bless you Tina for the love and support that you provide for not just Donnie but for Aunt Joyce and the rest of the family too.
After I saw you last time, I dreamed you and Donnie were surrounded by the love of family and friends. Seems like I was right. Sending you love and hugs. ❤️
You all have been in my prayers constantly. Thank you so much for keeping us all up to date on Donnie and so glad his pain is better controlled. Rest and know God has him in his arms
The updates makes me laugh and cry at the same time,glad Donnie is surrounded by love and family.Thinking of you all.
Sending love and prayers to each of you! Think of you both so often!
Love, hugs, kisses and prayers to Donnie, Tina, Darlene, Ronnie, Joyce, their children and grandchildren. Following Donnie's journey, makes me pray that my boys too have such a wonderful experience when they meet their maker. I am so glad Donnie is at home with family and hospice is taking great care of him. Is this not the best way for Donnie to meet his creator, with family, friends, and with the awesome selfless services of the great people of hospice. So happy he is pain-free, not nauseated, laughing and helping you to laugh…I cry again.
Sunny Sweet
I'm so glad that you are going to be able to get some well deserved rest. I have been and will continue to pray for all of you. My prayers are filled with you and your precious family and you are in my heart and thoughts constantly. In deep love Aunt Sharon
Hi Tina! Wow, that was hard to read, and it really touched my heart too. Tell "Dose" next time he takes a nap, I'll come back in that '42 sportster and we'll go for a ride. Give him a big "Bubba size" hug for me, and give him my love. Prayin' for you both all the time.
We love you guys! Bubba and Tracey
As always I am grateful for your sharing this journey with us! My prayers are for comfort, rest and peace for Donnie and all the family! Donnie and family are never far from my mind and on my lips with prayer! Glad you are able to sleep some Tina! Love and thoughts unending! Cindi McNiff
Your post made me smile. Prayers for you and your beloved.
So grateful for all of your family, so grateful Donnie is not in pain and ca eat and he's in a happy state. So grateful for Hospice care and just grateful that I can pray for all of you. Rest well sweet friend. I pray your sleep will be deep, healing and filled with sweet dreams.
love,
Suzie
So glad to hear that Donnie's pain and nausea are minimal. What a blessing you are for him, Tina, as are the many memories replaying in his mind. Sending love and prayers, as always ♥
Norma & Rick
Such heartwarming stories about your lives. I am so glad that Donnie always seems to be in a "Happy Place" even when his meds take him elsewhere. So glad a nurse will be staying for a few nights so you can get some rest Tina. As always we are praying for you both and think of you often. May God Bless and watch over you both. Love ya joe and hal
He may be thinking of the time I struck him out. One, two Three. Ha, ha. Love my brother twin. Prayers, as always.
Mark and Patti